Children with devastating genetic illness to get access to ‘life-saving’ drug

Children with a muscle-wasting condition called spinal muscular atrophy will get a "life-saving" breakthrough drug for just $40, instead of hundreds of thousands of dollars, with $240 million in funding to be allocated in the federal budget to list the drug on the PBS.

Millions to be spent on improving access to genetic testing after baby’s death

After losing their baby to a genetic condition, Rachael and Jonny Casella were determined to prevent heartache for other couples. The Health Minister was listening and has vowed to make "Mackenzie's mission" his life's work and increase access to couples for pre-pregnancy screening.

After losing their baby, this couple are fighting for others to access free genetic screening

Rachael and Jonny Casella lost their daughter Mackenzie to a genetic condition they had no idea existed. Now they're fighting for every Australian couple to have access to free screening before they start a family.